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SISTERS FIGHTING FOR A CURE Sydny, age 21 along with her younger sister Sevryn age 6 suffer from a rare genetic disorder called Wolfram Syndrome (WS). Wolfram Syndrome is a rare and devastating form of diabetes. Unlike common types of diabetes, these sisters will go on to develop vision loss, hearing loss and neurodegeneration. These symptoms progress through the first decades of life, and most patients lose their battle with this disease by age 30. Sydny enjoys photography, listening to music, writing & drawing. Sevryn enjoys reading and dancing, and like her older sister, she loves to draw and listen to music. Imagine losing your hearing, your vision, or both. Imagine losing your balance or coordination, having muscle spasms and or seizures. Knowing that your body is slowly shutting down. Sydny’s and Sevryn’s reality of living with this disease daily has become their motivation to raise awareness and funding.
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SARA'S SUSAC SYNDROME In December 2015 after being sick with migraine-like headaches, extremity numbness, gastrointestinal infections and vertigo for 5+ weeks, seeing numerous Dr.'s and finding no answers or diagnosis we were feeling hopeless. We knew Sara was sick but none of the Dr.'s knew what was causing Sara’s symptoms. On Dec. 3rd Sara woke up with part of her vision gone, immediately called and saw the family eye Dr. who sent her to a retinal specialist. She saw a different retinal specialist the next day. He said she needed an MRI and blood work immediately. He felt it was either an infection or an auto immune disease. The MRI showed brain lesions (or spots) on her brain.
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Pinups for Charity is a Colorado Non-Profit Organization